2 more weeks until the long awaited EEG. Until my little spiderman and I get to spend the night together at the Ronald McDonald house alone and stay up late and eat junk all night long. 2 weeks until we find out whether or not his brain is functioning normally. 2 weeks until we may get the go ahead to wean off of seizure meds.
2 1/2 years ago when he first was diagnosed with epilepsy, this day seemed so far away, if not impossible. The concept was so hard to grasp as he lay in teh hospital bed not coping with life. BUT, here we are! Matt has been seizure free for a year, and his doc said that if he had a clean EEG, then we could wean off the meds.
I am nervous that there will be a problem, but deep down, I know it will be a good report. The anticipation is crazy, but the rewards will be awesome!
No comments:
Post a Comment